Ethan was born with a lymphatic malformation a rare condition that that causes facial disfigurement as well as more serious issues such a restricted airway.
Due to the complexity and rarity of his condition his doctors in this country do not have the experience required to operate on him so he is going to have to go abroad for treatment and this will not be covered by the NHS.
The purpose of this site is to provide information on Ethan and his condition, to provide an update on his progress as well as information regarding fund raising for his operation and fundraising events planned.